Posted by Tiffany Just a question, we do the inhaled at around 9-10am with her morning treatment and then we do the other 2 treatments 4 hours apart. That puts us at bedtime before the next 4 hour treatment. We have kept a pretty good schedule with it, and I am not sure that we could get another one in while keeping with the 4 hour. I didnt know it could be 3 hours apart?? Maybe we will have to try doing it that way instead of the 4 hour schedule. By the way our daughter keeps amazing us with her ability to take pills. She hates taking the calcium that I give her (crushed, and syringed with water) well we found that she could even take the HUGE pills. So cool. I am glad that your daughter is doing well too. How sick has your daughter been this last year on GSH? Just curious. I love to hear hope that we might not have to fear every possible germ out there. The summer has been good so far- we are hopeful that someday soon cf will be an incoveniece, rather than such a heavy burden. Have a good day
on June 25, 2007, 2:03 pm, in reply to "Re: How are things going Tiffany?"
71.214.0.97
Yesterday and today we have been backing off of the enzymes. She was up to 5 ultrase with meals and we are trying to go back to her 4 before GSH and maybe even seeing if we could go back to 3?? We are going to try it slowly, but over the last month we have seen more floating stools than the last 2 years put together, so we need to try something.
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