Posted by Tiffany The next issue we encountered was that our daughter totally stopped eating. It was really frustrating and a bit scary. After about 3 days of not putting anything in her mouth we took some (poor) advice from the GI dr. who thought it was a bit senseless to limit her foods based on allergy results without having ever tried some of the foods. Basically being very condesending to us, "If you haven't seen any real reactions than why are you keeping your child who needs so many calories off of so many foods?" Well...he did have a point, we hadn't really seen any reactions because we havn't given her any of the foods that she tested allergic to. She did really well for about 10 days. We tried corn, wheat, milk, and she seemed to do pretty good. Then...we tried eggs. She is doing better today. They gave us several medicines to help with the block and I think it is helping. As far as the allergic cells in her GI tract they said it will take some time. She is eating again, not too healthy, but at this point if she will put anything in her mouth we are happy. She is scheduled for surgery (all the "oscopies" there are I think, colonoscopy, endoscopy, biopsy, bronchoscopy) on the 12th of September to check the integrity of the GI as well as the allergy issues. I am a bit worried about it due to the fact that she has to go under a general which means a ventilator which is always an issue especially with cf lungs , but I don't feel like I have a choice after this last episode. Please pray for wisdom all around. Also like I said, she seems to be coming down with something. I think it could even be that she wouldn't take her GSH on the days that she wasn't eating. We doubled up on her inhaled to try to compensate for it, but... who knows. I guess you do what you can do in a situatation like that. I think our saving grace through the last few months has been GSH keeping her lungs well. We have had a lot of running noses, but until today no cough. We are praying that with a few extra vest treatments and GSH along with zinc that maybe we can with GOD's help make it through another challenge. WE are praying and are asking everyone we know to be doing the same. It has been 9 months since she has been on a antibiotics. Praise the LORD for that!!!! WE are very thankful for GSH and know that we would be in a lot worse place without it right now. We are praying for protection and significant weight gain in the next 10 days before her surgery. I will let you all know how it goes. Thanks for your care. Tiffany
on September 2, 2007, 9:29 pm
71.214.3.247
Well, this has been quite the month. Sorry that I have not posted sooner, but...it has been a bit crazy around here. Last I posted (I think) we had gone to a GI dr. to see why our daughter was malabsorbing so much. I think we figured out from our regular pediatrician (the one who is totally for GSH and just all around a cut above the rest of the dr. as far as looking outside the box) she gave us diflucan to see if it was a yeast problem and guess what...after she was a lot better.
It landed us in a trip to the hospital with an anaphylaxis (spelling) reaction. Her airways were totally shut by the time we got to the hospital.
This week has been difficult all around. After the severe reaction a week ago Friday, by Monday she was having some abdominal pain. She stopped eating and drinking and by Wed. evening she was in severe pain. Thursday we spent the day at the hospital running test. We found out that she had two colon blocks along with really high allergy markers in her blood. Still probably from the reaction to the egg. She also lost a pound and 2 oz in those 4 days of not eating and vomitting. Whew, sorry this is so long, but now I guess you know why I haven't checked in lately.
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