Posted by CarrieD I also wanted to add this to the update:
on September 1, 2007, 7:53 am
63.169.41.41
Today was my 3 year old sons first visit back to the doctor since he started the GSH. First of all his oxygen saturation was 99%. It hasn't been this high since he was about 1 1/2 years old. At his last visit we had to get him to take deep breaths just to get it up to 96%. This time as soon as she put it on his finger it registered 99%. Next was his x-rays. He has had great improvement since his last x-rays. Those lungs are looking good!!!! His weight gain is only a pound since his last visit but he had grown 2 inches in height. His doctor seemed just thrilled with his growth. He is now in the 45th percentile....he started out in the 5th!! I really don't know all the technical terms for all of this...just trying to describe the best way I can. I could tell that his doctor was impressed at how great he is doing. He asked about the GSH and how much I give him. He asked me to bring it to the next visit. He has an awesome doctor who seems open to new things. I am thankful for that. We also got fitted for a vest...FINALLY!! So we should be getting that in a few weeks. I know this is going to make life a little easier. So just wanted everyone to know this. We are so thankful for GSH and how much it has helped our son. I can't imagine where we would be without it! Thanks for reading!
Carrie
It took me some time to get the nerve up to try GSH. It is one thing to try new things on yourself but its a whole different story when it's your child. I was so nervous when we first used it but I knew we had to give it a try. I am not the type who would usually give something to my child without the doctors 100% totally giving me their support. But I realized that with cf I had to break out of my comfort zone and go with what I felt in my heart was the right thing to do. After talking and emailing Hope and Dr. Bishop I felt ready to give my son his first dose of GSH. I knew he was improving everyday just by observing how he can run & play without coughing, he can now wake up in the mornings without coughing and wheezing and needing a treatment first thing. All of this and I was also able to get him off pulmozyme which I never saw any real improvement from anyway (I am not saying that it dosen't help some people). But yesterday when I got confirmation from the clinic that he has indeed improved I was so happy! I am curious to find out next week what his cultures look like and also to find out the results of his blood work. Hopefully everything will look good.
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