
Posted by Lorna Greig
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on May 6, 2009, 11:24:37
139.184.30.135
Hello everybody, this is the first time I have used this message board. My son Jacob had a complete AVSD reair in july last year, he also has Down Syndrome. I haven't been in touch with ECHO much and have not been able to go to any coffee mornings as I work, however I have just raised some money for the charity and whilst I met with Jo yesterday in London she suggested I get on the message board as there may be some other parents who may like to get some info from me about the op and other stuff. If there is anyone out there who fancies a chat please get in touch I live in Hastings. Lorna x
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