ECHO Dialogue: Re: trying to cope

Re: trying to cope

Posted by Claire & Jelly on August 21, 2009, 19:34:30, in reply to "trying to cope "
88.106.74.127

So sorry to hear of your new traumatic life. My son who is now 6 has a different condition so I don't have any advice on that subject but I will say watching their every move is very natural.

I don't know if you ever get out of the habit of watching them. I have had another son since having Jel and I watch him too and there is nothing wrong with him.

Please try not to feel despair. Evelina look after heart children excellently. If you ever get so worried you can't cope you can get support here or ring your cardiac liaison nurse, they are always helpful in answering your worries.

Sorry I can't help you specifically, really feel for you but it does get better, there IS light at the end of that dark tunnel.

Much love to you

Claire

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