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I am so glad that you hopped onto this site. It really does feel as though the earth has opened up and the words "breast cancer" will engulf you. At the beginning when you first hear those words "breast cancer" it is the worst time...a frightening diagnosis and no information or plan of attack. A person can be overwhelmed by the loss of control at such a time I know I was as are most women.
My diagnosis was infiltrating ductal carcinoma that spread into the axillary lymph nodes. The tumor itself was high grade with a high rate of division. Very scary at the time. Then I learned that newer treatments were available to me that after surgery had their sights set on permanently altering and wiping out any stray cancer cells. That was 6 years ago and there is no evidence of disease today.
One important point to make is that neither my doctors or I focused on chances of success or percent of patients who survived my type of cancer. Since those percentages are based on group statistics they may or may not apply to me. I really believed my oncologist when she said that I was a statistic of ONE.
Mary you also are a statistic of one. You and your oncology team will devise a specialized treatment plan that is best suited to provide the best path for a successful outcome. Knowing this will arm you with a great feeling of power that will challenge your IBC and give you a winning journey.
There are women who post here that have an IBC diagnosis and when they read you post, they will hop on I am sure. In the meantime please post again when you have some information on possible treatment...we are here for you always and want to help you as you start treatments.
Hugs and prayers,
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