Keep doing what you're doing! I've asked my mother about what it was like to take care of me. All she could say is that she followed her instincts and tried to protect me. I know that she sacrificed her wants/needs entirely until I was a toddler (based on stories I've heard). She lost 2 of my older brothers to CF a few years before me, so that would explain her extreme determination.

It is apparent that you do your research and all you can to find answers for your daughter. I don't think there's a way to be a better mom!

As an adult, I don't really tell my mom everything that is going on with my health. She gets upset easily when I have to do IV, etc. So, now I try to protect her from it! Isn't that ironic?