Thanks for your interest in our study. I am glad that your daughter is so well with glutathione. Here in Germany, the study of inhaled glutathione has indeed begun, but unfortunately I can’t share any information with you at the moment, for we will get the results not until the end of the study, which will be in December 2009. The reason for this is that the study is “blinded”. That means that there are two groups (one with glutathione and one with placebo) and nobody knows which patient is in which group. This is important for a thorough analysis and to get significant data. Hence, I am very sorry, but I am afraid you have to wait to get the results. By the way, we will update the www.clinicaltrials.gov homepage regularly.
I would very much appreciate, if you write to me again after the end of the study to get the results. Thanks a lot.
Until then: All the best to you and your daughter!
Kind regards,
Jutta
Jutta Bend, Ph.D.
Scientific Manager
Mukoviszidose Institute
gemeinnützige Gesellschaft für Forschung und Therapieentwicklung mbH
In den Dauen 6
53117 Bonn
Tel: +49-(0)228-98780-47
FAX: +49-(0)228-98780-77 oder -48
Geschäftsführer: Dr.Andreas Reimann
Vors.des Aufsichtsrates: Horst Mehl
Sitz Bonn, Registergericht Bonn HRB 14384
Bauen Sie mit uns das Haus Schutzengel! www.haus-schutzengel.de
Spendenkonto 70 888 00 - Bank für Sozialwirtschaft Köln - BLZ 370 205 00
-----Ursprüngliche Nachricht-----
Von: Carrie Godfrey [mailto:cabgodfrey@bellsouth.net]
Gesendet: Freitag, 11. April 2008 04:19
An: Bend Jutta
Betreff: NCT00506688, Muko-D-GSH-4, Efficacy and Safety Study of Inhaled Glutathione in Cystic Fibrosis Patients
Hi Jutta,
My 10-year-old daughter has been using inhaled glutathione for over 5 months. We are in the US and I was wondering if the study of inhaled glutathione in Germany has begun and if so, have you had any results yet? It has really helped our daughter. I am so anxious to know the results of your study.
Thanks,
Carrie Godfrey
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