I am very new to this forum. I was recently told of GSH by another CF mum. Since then I have found it very hard to stay away from the computer. As I read everybody's stories about their success with GSH, the more I want read about GSH. Your stories about your boys are so inspirational.
Our daughter is 7 years old and was diagnosed at 3 weeks of age. I am very interested in trying GSH for our daughter. She takes Losec for reflux and has done so since 6 months of age. She takes Creon's. But although I feel I dose correctly she still gets an upset tummy. I often find her stools do not flush properly. She also has the bloated looking tummy, sinus problems and polyps. She is on pulmozyme and I incorporate Hypertonic saline into her daily physio routine twice a day. She has been well for quite sometime, and has not had the need for antibiotics for several months now.
I feel at present,she is trailing along great. It is not until I read many other posts that I realise that our daughter could be doing so much better.
I guess like some parents, I am excited but also nervous about starting her on GSH. There seems to be several types of GSH available. How do I know which one will be best for her ?. What type of dosage would I give her ?. (ie) oral or inhaled or both.
As you have been using GSH for quite sometime now, would you mind giving some advice.
Kind regards
Stef
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