Thanks for sharing Hope! We started the inhaled GSH back up because her PFT's were very good considering she has an infection...just can't imagine they would be that good if she hadn't been on GSH for the last several years. And I did need the reminder that GSH is not a cure..I think I was in denial about that one. Keeping our eyes on the GSH trials and the pipeline. Praying lots. We will find out Tuesday how Ashleigh's CT of her lungs turned out and if she is allergic to aspergillus (they did a RAST test). And where to go from here (possibile 3 days inpatient and IV's at home). She has only been in for a tune-up (6 years ago) pre GSH and that is a pretty good run. Thanks to everyone that answered my post..just needed to hear from a few of you. It's tough for us right now. But, she is doing well overall and we can't complain.