GSH changed our lives!

Posted by Patricia Chapman on May 12, 2004, 7:01 pm
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The efforts of Valerie Hudson and Dr. Bishop have changed my and Jesse's lives. It is difficult to fully express what this information has meant to us and the hope it has given us.
So again, thank you sincerely.
Jesse was seen by all three clinics/physicians following him prior to beginning the treatment.
This was to get some baselines as a means of determining his progress.
My hope at the onset was that we would see changes in two main areas: Increased lung health and much needed weight gain.
We have seen great things happen in one of those areas, as you might guess, his lung health has greatly improved. Along with this, his energy level has increased. In this arena of success we are extremely encouraged.
After only two days on the treatment Jesse told me his "lungs don't burn anymore". I was amazed by that, and stunned, because I did not know his lungs were burning, as he described it. He had mentioned that they felt sore, like a store throat, but I did not realize the extent of what he was going through. I have to share that this realization broke my heart some, and in the same week I went into his room after he was in bed one night, and I got on my knees next to his bed and told him I was sorry that I didn't know what he had been going through. I had to ask him to forgive me for the times in the prior two years when he would cough incessantly that I felt like I could not go through any more of the puzzling struggle to try to figure out what was causing the coughing 24 hours a day!
Jesse said that before starting the gsh it was like he had a nail in his wrist that had been there for so long he eventually learned to ignore the pain, and then when he started the gsh it was like someone took the nail out of his arm and he realized how good it felt to not have the pain anymore.
I had asked the cf doctors during that 2 year time what was causing his dry, unproductive 24 hour a day cough, and they never had an answer.
Jesse does not cough like that anymore. At night, usually around 2 or 3 am, if he coughs he simply takes a gsh capsule and the rest of the night is peaceful. His energy level is so much greater. The color in his face is so much better, his eyes are bright and lively, and he even sounds different when he talks.
Two very interesting things have come out of the new experience for us. 1) I realized the severe intolerance Jesse had to sugar, and tracked this, again with the help of Valerie Hudson to a yeast infection in Jesse's gut.
His symptoms of this were difficult to detect, and much of what he was going through from the yeast infection was written off as "CF complications". What I've learned about sugar in the past couple of weeks is that 1 teaspoon suppresses the immune system for two hours and it takes up to 3 days for baselines to return to normal. This is of particular significance to me since we know that CF is the cause of immune deficiency. And sugar as we know sets the environment for yeast in the gut to thrive. (Splenda is sugar modified using bleach.)
I would like to share just a little more of our experience. When we had the 3 appointments with the various doctors, I knew the ND would be very supportive, and believed that the pediatrician would be supportive, even if only from curiosity. In fact the pediatrician was very supportive, and agreed that after reading the Hypothesis Paper that it all made perfect sense to him. He is anxious to see the published results of the trial run by Dr. Bishop.
The CF doctors, though, took a severe position, and decided that Jesse at that very moment of the appointment should be hospitalized with a g-tube and intravenous antibiotics ! I was stunned. In the past I could not get their attention or any answers to my questions. Now, they want to skirt all discussion about the glutathione and oxidative stress, and put him in the hospital! Basically, I told them, "You can do all of that to me, but you won't be doing it to Jesse!" I knew, and still know in my heart of hearts that Jesse was doing better than ever, and that I had to be sure I had done all I could to help his weight increase before opting for a g-tube.
After that appointment something in me said that the hospital may take action against me, and sure enough, they did! Social Services showed up at my door about two 4 weeks later. There were many allegations made that spoke of my negligence of Jesse. The social worker and the RN who met with us listened to me for nearly two hours. I explained the many incidents and issues that have plagued our experience with CHOC causing me to not trust the doctors, and I explained the GSH treatment. Jesse was completely clear on that day, as he is most of the time, and the RN was truly amazed to see him as well as he is. She said she has seen many CF cases, and is familiar with the typical scenario.
At the end of the visit, the social worker and the RN looked at a few pictures of Jesse and on their way out told Jesse that he was lucky to have me and that I am lucky to have him too. Incidentally, the SS ladies that followed this case became big supporters of me and what I was doing for Jesse.
The RN said my son did not look like the typical CF case. And when SS closed the case, they expressed to me their disgust with CHOC and told me that they could see clearly that I was doing everything and more for my son that could be done. They went on to say that they have had several cases instigated by this facility that resembled mine, and went so far as to tell me to contact them in the future if I believed they were going to do the same thing again.
Used Properly, Glutathione Will Work For Everyone. I believe that caution is utmost in anything we attempt - even the meds that the doctors prescribe. Have you ever read the warnings and possible side affects on some of the meds the doctors prescribe? I have, and if any of the supplements I give my son had even one of the side effects that are listed on the meds they give him, I would not even think about it. I read the hypothesis paper by Valerie Hudson no less than 5 times. I studied it, and made sure I understood every question I had, not just about gsh itself, but every aspect of how it works. We should Never, never go into anything blindly - not even if a medical doctor says it's okay. To what extent GSH will help may depend on the individual and their case, and whether it is being used in an optimal manner. As far as it being proven, the proof is in the living results.
Glutathione is said to be so essential to life that without it life could not exist. That's a scientific acknowledgment.

I believe that the symptoms of the sugar intolerance along with the glutathione deficiency were so commingled that I didn't know what I was dealing with, and in the midst of all the confusing information these symptoms just were written off as the confusing symptoms of CF pathology. I think that the thing that was most difficult for me was the fact that there was no "rhyme or reason" to the symptoms before. I am a computer systems analyst, with an emphasis on "analyst". I think it is in my blood to try to solve puzzles, and it was so difficult for me to let go of these things and just pass it off as CF.
I told someone recently that I have learned so much about so many things including myself through this experience with Jesse's diagnosis.
But the one thing I haven't learned is how to let go, how to give up. I'm glad for that.

My hope for the future is that every CF patient will understand the benefits of GSH, and how necessary it is for the CF patient early on. I believe that if I had started Jesse on GSH in his early years he would not have suffered the way he did, and we would not be working to reverse damage already done.
But what I will always be greatful for is this new start, and indeed it is a wonderful, strong, hopeful new start. I would like to end this message by saying, I love you Jesse David. I'm so proud of you every day! Love Mom