I also wanted to add this to the update:
on September 1, 2007, 7:53 am
Carrie
It took me some time to get the nerve up to try GSH. It is one thing to try new things on yourself but its a whole different story when it's your child. I was so nervous when we first used it but I knew we had to give it a try. I am not the type who would usually give something to my child without the doctors 100% totally giving me their support. But I realized that with cf I had to break out of my comfort zone and go with what I felt in my heart was the right thing to do. After talking and emailing Hope and Dr. Bishop I felt ready to give my son his first dose of GSH. I knew he was improving everyday just by observing how he can run & play without coughing, he can now wake up in the mornings without coughing and wheezing and needing a treatment first thing. All of this and I was also able to get him off pulmozyme which I never saw any real improvement from anyway (I am not saying that it dosen't help some people). But yesterday when I got confirmation from the clinic that he has indeed improved I was so happy! I am curious to find out next week what his cultures look like and also to find out the results of his blood work. Hopefully everything will look good.
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