My son is 21 years old and now goes to the adult clinic, so I let him go to his CF check-ups by himself. Had I been there, I doubt the doctor would have answered my questions about Trikafta anyway. Instead, I probably would have gotten yet another lecture on GSH, "which has no studies on the long term side effects, blah, blah, blah..." Rrrr! My son has been on GSH since he was 5 and he does far better than all their other patients. Those doctors just don't get it and I'm afraid they never will.
At any rate, any help with finding some statistics on Trikafta would be greatly appreciated.