Hi Julie,

I'm sorry to hear this news. I still remember the night (about 15 years ago) that my doctor called and told me I cultured cepacia. I have the cenocepacia which is the one most highly associated with "cepacia syndrome". I was told that I would be fine, would either go downhill slowly, or would quickly go downhill.

What a scary thing for a teenager who has always done well! I remember going to bed that night and just being scared and talking to God about it. That night I had a peace come over me like you wouldn't believe....it is like I felt God's hand on me telling me not to worry...He was in control.

While I still worry about the cepacia from time to time, especially after hearing a bad story about it, I always think back on that peace that God gave me.

I have left things in His hands and His hands are a safe place to be. Today, I am 32 years old (33 in August). I have an FEV1 of 70%, I am extremely active, able to exercise, and have gone 1 1/2 years now without any antibiotics (oral or IV). GOD IS GOOD!!!!

I realize that things can change at any time, but I also know that I have a specific purpose for being here on this earth. I also know that no matter what happens in my life, that God is good and His plan is perfect.