Our doc seems normal enough, but I don't think she's going to be at all happy about it. But, they're doing an investigational research project on the CF kids' records. They asked me to sign a release of records, giving ok to "participate" in the study. I can't say yes if she's not getting the therapy in those records.Its inaccurate data! That's why I'd like to be up front with them. yes, we'll participate, but know that we are using GSH both oral and inhaled and not the Albuterol.
I am afraid of that "child neglect" threat, as in PA anyone can report anonymously.