Re: GREAT article on GSH in human disease!
Thank you HOpe and Denise, I really needed to hear your side of it. I just felt that I needed to share exactly what is going on with us. We go back and forth with GSH like a teeter totter. I want to use it but I worry that without clear cut evidence that it's safe, we may be damaging her lungs. The nodule in her lungs especially concerns us. The doctors have no idea what it is. And I have absolutely no idea either and can't even begin to blame it on GSH. Okay, I do know this for sure, oral GSH got us out of a terrible bind when Ashleigh was younger. She just wouldn't eat. GSH worked well for her and really helped, but then things changed and she started having all sorts of gutt issues and we were worried it was from GSH. So I am sorry for posting an email that made it seem like GSH is bad. I took my frustration out on GSH. I want it to help her so bad that when we see evidence that it isn't I get mad. So please, to anyone reading these posts, don't let our situation stop you from using GSH and possibly having great results. I know that soon we will have clear cut studies to show exactly how GSH helps those with CF (or a little a much better idea). We will not give up on GSH as a treatment, but for now, are choosing to hold off. I can tell you this...as soon as we stopped the inhaled and the oral, her appetite went WAY down and her weight is the worst its ever been. SOOOO, we have introduced ORAL GSH back into the picture. I feel comfortable with it because she has been using it for years, off and on, and at this point, we need all the help we can get. I just hope she isn't dealing with a lot of yeast...thank you for your concerns and your prayers. This really is a great forum.
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