i'm really sorry to hear that life has become such a hell for you because of these dual conditions. but glad also that you're still fighting! i'm a great believer that what has happened should have happened (simply because it did happen). which means we're all right where we should be, facing exactly the challenges we should be facing - however painful, embarrassing, baffling, etc. they may be. you mentioned us being a community - albeit an online community - and i agree, we definitely have more clout as a group of people connected by this condition. though i may be the heart and soul of this board up till now, it's great the folk like yourself, and everyone else are stepping up, writing about your experiences, and dreaming up pragmatic ideas for ways forward with this condition.
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