But my urgency problems have been getting worse and I sought professional help again. I asked the incontinence nurse how people who are paralysed from the waist down manage Ė they get out and about so presumably they have some way of arranging for a poo to happen at a time thatís convenient for them. She said that many of them use glycerol suppositories to induce a poo. That was enough to convince me I should give them another go Ė 8 years later. By this time I was ready to try anything. Again I found it difficult (and unpleasant) to put in. It resulted in pretty urgent poo, but this time it was just one poo Ė I didnít have to make an urgent visit to a toilet later in the day. I tried it three times on non-critical days ie days when I could stay at home all day if necessary. On all three occasions I had just one poo, within about 20 minutes of inserting the suppository.
So I decided to brave using one on a day when I needed to go out. It worked! I had a controlled poo before I went out (within 20 minutes of inserting the suppository) and felt like a free person for the rest of the day. [The combination of urgency + shy bowel is really very restricting. If Iím out with friends and the urge comes on, but I canít go in a public toilet because of the shyness, I feel in real danger of having an extremely humiliating accident. So getting it out of the way before going out is highly desirable.]
Iíve now used a suppository on three occasions in earnest, when Iíve had to go out. So far, so good! Itís worked each time Ė poo within about 20 minutes of putting it in, and then Iíve been ďsafeĒ for the rest of the day. Iím so thrilled I thought Iíd post something even though itís still early days. I really wish Iíd persisted back in 2011 Ė I could have avoided numerous embarrassing situations. If it continues to work it is going to be so liberating.
From what Iíve read glycerol suppositories arenít habit forming and some people use them every day without problems. I did see one article which said there was a risk of becoming dependent, ie not being able to poo without using one. Iíll have to see how things progress (and Iíll take advice from my GP/nurse), but Iím hopeful that this is going to be an effective ďworkaroundĒ for me. Iím so looking forward to being able to go out on group walks, or even adventure holidays, which I havenít been able to do for fear of a horrendously humiliating accident.
Hope that helps someone. It seems very odd to post all this in a public forum, but hey, and if it reaches someone who can benefit itís well worth doing. Thank you Baz for providing the forum.