hi Ger,

glad u have found this site.
maybe there aren't any such organisations in holland? i don't think there are any in germany (i'm german), and the only reason i found out that this condition actually has a name was because i have lived in the uk for several years.
one day there was an article in a newspaper about it and since then the condition seems to have been covered quite a bit by the media.

so maybe the english have just realised the condition's existence before anyone else?
in any case i wish u all the best and maybe holland and germany will follow england and found their own parcopresis-dedicated organisations. :-)